As we are about to start the week, I am a huge ball of crazy nerves. I know in my heart that this next couple of weeks will be fine, and God has His hand on Silas, his medical team and the whole process. The nerves won’t fully hit me until after Ryan … Continue reading when blessings pour out: philly update
Our appointment with Silas’s endocrinologist went well the other day. I really like when all of us can be together for Silas’s appointments, and since Ryan was off from work Friday, we all got to drive to the hospital together. Maybe it’s more of me running over the list of thoughts I have before … Continue reading Silas’s Visit with Endocrinology
Another update on our little dude and upcoming surgeries. We went in to see Silas’s ENT last Friday and had a really good visit with her. She looked at his tonsils and her reaction made us laugh a little. Apparently his tonsils are enormous, but the one on the left was “WOAH!” so dang … Continue reading A Continued Update.
Hey y'all. Here are some bits and pieces of what has been going on since the summer. Over the last several months we’ve sort of been in the middle of our own quiet chaos trying to plan ahead for Silas’s appointments and future surgeries, while figuring out what has been needing to … Continue reading A Silas Update: CHOP, diagnoses, surgeries and progress
I hear him in the morning, banging the walls with his hands and bouncing up and down on his crib's spring mattress. He babbles and sometimes softly giggles. He will cry but it isn't the same kind of cry you would hear from a two and a half year old. It's a quiet cry, … Continue reading The unexplainable beauty & heartache of raising a child with hearing loss.
Dear Silas, I think about what I would say to you if you could understand the words from my mouth. If you were old enough to understand, I’d want to tell you that you have changed my life. I’d tell you that you have changed my vision, the way I listen, the way I interpret … Continue reading Happy Birthday, Silas!
After arriving for Silas’s scheduled surgery to explore his pinkie finger and place PE tubes, his ENT doctor decided it would be a good time to perform a bronchoscopy of his airway. Over the last several months, he has had numerous amounts of “colds” and respiratory issues involving coughing, hacking and congestion. We have really … Continue reading month 20: more surprises