little man update

It may be easier for me to start with today and work my way back over the last month to update you all on Silas. This morning, I got him to school which was exciting because he has only been a handful of times since early October when he had his incident at school.  He …

Hard Stuff

Where do you start with an update when you feel like your brain is the center of a constant tornado?  I'm not sure of any other way to describe how I visualize the way it feels.  Not too long ago, I was told by a beloved doctor that I really need to find a way …

doing big things

"I'm sitting here drinking my morning cup of coffee. I'm thinking about how frustrating it would feel if I couldn't have something that brings me so much comfort. Since Silas was born, he's been fed through a tube that pokes out of his belly. It's been his chance at a life he otherwise wouldn't have. It's been our best friend for nearly five years. As much as we love his feeding tube, it's never been something we have just settled for."

Post-Phillybound Update

I've had a bunch of messages from friends and family asking about Silas since we've been home and realize I probably left some of you hanging since we got back from Philadelphia. For the most part, Silas is doing great! Before leaving the hospital, we managed to figure out a more strict but doable schedule …

when blessings pour out: philly update

                        As we are about to start the week, I am a huge ball of crazy nerves.  I know in my heart that this next couple of weeks will be fine, and God has His hand on Silas, his medical team and the whole process.  The nerves won’t fully hit me until after Ryan …

Silas’s Visit with Endocrinology

             Our appointment with Silas’s endocrinologist went well the other day.  I really like when all of us can be together for Silas’s appointments, and since Ryan was off from work Friday, we all got to drive to the hospital together.  Maybe it’s more of me running over the list of thoughts I have before …

A Continued Update.

 Another update on our little dude and upcoming surgeries.                We went in to see Silas’s ENT last Friday and had a really good visit with her.  She looked at his tonsils and her reaction made us laugh a little.  Apparently his tonsils are enormous, but the one on the left was “WOAH!” so dang …

A Silas Update: CHOP, diagnoses, surgeries and progress

           Hey y'all.  Here are some bits and pieces of what has been going on since the summer.              Over the last several months we’ve sort of been in the middle of our own quiet chaos trying to plan ahead for Silas’s appointments and future surgeries, while figuring out what has been needing to …

The unexplainable beauty & heartache of raising a child with hearing loss.

               I hear him in the morning, banging the walls with his hands and bouncing up and down on his crib's spring mattress. He babbles and sometimes softly giggles. He will cry but it isn't the same kind of cry you would hear from a two and a half year old. It's a quiet cry, …

Happy Birthday, Silas!

Dear Silas, I think about what I would say to you if you could understand the words from my mouth. If you were old enough to understand, I’d want to tell you that you have changed my life. I’d tell you that you have changed my vision, the way I listen, the way I interpret …